As Manchester United's beaten and battered players waited for confirmation of Brighton's fourth goal at the Amex Stadium, their captain was making his point.
Soldier 'superhero' dad on £1 million mission to save girl, 13, with deadly brain condition
24.04.2022 - 11:41 / manchestereveningnews.co.uk
A former soldier has formed a close bond with a girl fighting a deadly brain disease - and launched a mission to try to save her life. Dad-of-two Darren Hardy, 36, was reduced to tears when he heard about schoolgirl, Aggie Candy-Waters, who was diagnosed with a deadly brain condition aged five.
Now 13-years-old, Aggie who used to run, play and sing is permanently in a wheelchair and is rapidly losing her fine motor skills - meaning she is fed, dressed and carried by her parents and is losing her ability to speak.
But, there is new hope. Doctors at the Children’s Hospital of Philadelphia have made a breakthrough. New gene therapy that slows down the disease in mice could help save Aggie and children like her - but £1 million is needed for human trials to begin.
READ MORE: Man United ace Cristiano Ronaldo posts picture of newborn daughter after sad death of his son
Darren, who served in the British Army for 15 years, t ook on a challenge starting in Salford that was so gruelling it will now take him six months to recover
He tasked himself with running ten consecutive marathons in 100 hours from Manchester to London. He is raising money to find the world’s first treatment for this rare, incurable and deadly disease known as H-ABC - a severe form of TUBB4a leukodystrophy. Sickness and stress fractures meant he completed 7.5 marathons in 90 hours - and to date has raised over £32,000 for this challenge.
For Aggie, and thousands like her around the world, there is hope for a treatment, yet without vital fundraising from people like Darren, there is a chance that the medications under development will not be ready in time. “I’m not embarking on this light-heartedly,” he said before the challenge, which began at Salford
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