Tributes paid to girl, 4, who died hours before her first day at school
11.09.2023 - 07:57
/ manchestereveningnews.co.uk
A family have paid tribute to their "spectacular firecracker" of a daughter who sadly died after a battling a heart condition. Rose O'Leary sadly passed away on Monday (September 4) after undergoing surgery to repair a defect in her heart.
The four-year-old was due to start school just a day before her death. Doctors detected that Rose had an interrupted aortic arch at her 20 week scan.
Her parents were told Katie O'Leary-Hall and Sue O'Leary-Hall were told that Rose had an interrupted aortic arch at her 20 week scan. The condition is a rare one that only affects one in 50,000 people.
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YorkshireLive reports that the condition happens when the aorta - the heart's main pipeline - doesn't form completely. Despite undergoing several successful surgeries in her lifetime, Rose tragically died earlier this week. Her childminder, Amy, has set up a GoFundMe page to help cover the costs of her funeral.. You can donate here.
Katie told how Rose underwent surgery to try and repair the defect when she was born, but surgeons were not able to patch the aorta due to Rose's being "very small". She said Rose instead had the Norwood Procedure when she was just three days old, and stayed in hospital for five weeks afterwards.
"She was doing really well," Katie said. "We were hoping they would be able to do the operation and they would be able to turn her heart back to red blood and blue blood. We knew from her being six-months-old she would need another open heart surgery."
When Rose was 10-months-old, she underwent more surgery but it was not possible to do the repair but despite this she "at first seemed to do really well but she had a stroke".
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