As one of the first black goalkeepers in the modern top flight, Alex Williams had to endure more than most professionals do in their careers.
06.08.2023 - 06:43 / manchestereveningnews.co.uk
Looking at Ellie-May O’Connor, you’d think she was just like any other 11-year-old girl.
The youngster loves nothing more than spending time with her loved ones and competing in dance competitions.
But what many don’t know is that the schoolgirl actually has a hidden condition – one so rare that even a sudden surprise could prove fatal.
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Ellie-May was born with Catecholaminergic Polymorphic Ventricular Tachycardia type 1, a rare heart condition which affects the electrical system of the heart.
CPVT causes the level of calcium inside the heart cells to not regulate properly, meaning people with the condition are vulnerable to abnormal heart rhythms.
A sudden rush of adrenaline could have devastating consequences for Ellie-May – such as the heart’s response to exercise or unexpected shock.
The schoolgirl, from Glossop, was diagnosed at birth and shares the heart defect with her dad Sean, 29. Mum Tara says her daughter’s condition is always on their minds.
“Sean used to collapse when he was playing football,” she 29-year-old said. “And that’s what makes it so scary. Obviously, as a parent, you have that worry in the back of your mind all the time.
“She’s my absolute world. I adore her with every fibre of my being. I love her to piece and I’d do anything to protect her. The scary thing is, there’s not one thing I can do to stop this happening.”
Ellie-May was diagnosed with CPVT when she was just six-weeks-old when testing confirmed she had the condition.
The tot was then referred to Manchester Children’s Hospital and has been taking beta blocker medication ever since.
But despite taking medication, the youngster
As one of the first black goalkeepers in the modern top flight, Alex Williams had to endure more than most professionals do in their careers.
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