teen who died after having heart surgery say the charity set up in his name helped them survive losing him.Zak Scott was born in April 1996 with a congenital heart defect called pulmonary atresia with Ventricular Septal Defect (VCD) - more commonly known as a hole in the heart.The Kilwinning youngster underwent surgery almost every year of his young life, culminating in an open heart operation on March 9, 2011, in what doctors at Glasgow's Yorkhill Hospital and his family thought would be the