Ady Barkan, Subject of Documentary ‘Not Going Quietly’ and ALS Advocate, Dies at 39
02.11.2023 - 08:27
/ variety.com
Michaela Zee Ady Barkan, an attorney and liberal activist whose story was featured in the 2021 documentary “Not Going Quietly,” has died. He was 39. His wife, Rachael Scarborough King, shared the news on X/Twitter Wednesday, noting that Barkan “died from complications of ALS.” “You probably knew Ady as a healthcare activist.
But more importantly he was a wonderful dad and my life partner for 18 years,” she wrote. “Ady fought for the 24/7 care he needed to be home with us until the end of his life. It’s impossible to thank his incredible caregivers enough for their labor and care, which allowed us to live as a family through Ady’s health challenges.
Everyone should have that chance.” King continued, “Thank you to everyone who has supported Ady and our family over the years — from the amazing caregivers who became family to us to the activists facing their own health challenges who joined the movement he was building [Be A Hero].” Barkan, who was diagnosed with ALS in 2016, used his own battle for healthcare rights to become a leader in the effort to save Affordable Care Act. He was the subject of the 2021 documentary “Not Going Quietly,” directed by Nicholas Bruckman, which follows Barkan on a national campaign for healthcare reform. In 2018, he co-founded Be A Hero, a nonprofit organization that aims to expand access to healthcare.
The organization’s co-executive director Jamila Headley shared in a statement, “After his diagnosis, Ady chose to use the time he had left fighting to create a country where health care is treated as a human right. He knew he was building something that would outlast him, and his relentless campaigning made him one of the most prominent health care advocates in the nation. Ady testified
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