'My son is in so much pain - we can't even give him a cuddle'
06.05.2024 - 09:15
/ manchestereveningnews.co.uk
A mum has described how she 'can't even give her son a cuddle' as he is in so much pain.
Joshua Cleaver was diagnosed with Complex Regional Pain Syndrome (CRPS) four years ago after a fall in his school playground, Birmingham Live reports. The 14-year-old now says the pain he suffers is 'too much to handle'.
His mum Lisa has been unable to hug him since the incident and said sometimes even just touching him would make him cry. Joshua's family and friends have now launched a plea to fund vital overseas treatment for him.
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CRPS is a 'poorly understood condition where a person experiences persistent severe and debilitating pain,' according to the NHS. The condition has no known cure, but treatment options are available at the Spero Clinic in Arkansas, at the cost of around £75,000.
Joshua's family hope he can get the treatment and 'get his life back'. On the family's fundraising page, the youngster, from Solihull, described the condition in his own words as he said he feels like he is 'missing out on growing up'.
Recalling his CRPS diagnosis, he wrote: "It was pain like no other I had felt before; it was a searing red-hot pain, right down my spine and all over my back. I just screamed and could not stop. It was agonising.
"We rushed to the hospital to see what was wrong. Four and a half years later I really struggle to do anything. The pain is just too much for me to handle - I get very little sleep, and all my life is consumed by pain.
"Some days I cannot do anything, I mean anything. I feel like I am missing out on growing up."
Mum Lisa added: "If I was to touch Joshua's hand, that would be enough to make him cry out in pain. The