Mourning his mom. Anne Heche‘s son Atlas is speaking out for the first time since the actress’ death.
06.01.2023 - 19:17 / dailyrecord.co.uk
A man has suddenly died of a rare disease which 'nobody has ever survived'. Jason Tolson, 30, passed away on New Years Day after a battle with an aggressive immune disorder, reports Yorkshire Live.
The 30-year-old from Yorkshire was diagnosed with Anti-MDA5 Dermatomyositis last year after his health began to deteriorate. Dean Blakeley, Jason's father-in-law, wants to raise awareness of the disorder following his son-in-law's tragic death.
Jason began to start feeling unwell in May 2022 and started to lose hair and weight. The 30-year-old then began to get sores on his body and underwent several tests.
These included CT scans, MRI scans, and cameras into his body. Doctors concluded that Jason was not suffering from cancer, which Dean says was a 'relief'.
He said: "It was a big relief when we knew it wasn't cancer, we thought oh great this is it now he will get better." However, medics were concerned his immune system was attacking his body.
Jason was then diagnosed with Anti-MDA5 Dermatomyositis and was put on 16 different drugs and steroids to try and stop the condition attacking his immune system. Dean says it was a significant blow when they were told the news.
He added: "The prognosis is very bleak because it is so rare they don't know how to treat it, its just a case of dealing with other specialists. Its a game of trail and error."
The 30-year-old then underwent 12 plasma exchanges while in hospital and two rounds of chemotherapy. Despite undergoing several versions of treatment his family were called on New Years Day to say that he had deteriorated so much he wouldn't survive.
Dean said: "He was going to die so made the decision to not make him suffer anymore, he passed away in about 10 minutes of his oxygen being
Mourning his mom. Anne Heche‘s son Atlas is speaking out for the first time since the actress’ death.
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