He became The Christie's youngest ever patient at just 18-months-old when he was tragically diagnosed with a rare brain tumour.
19.01.2022 - 01:37 / manchestereveningnews.co.uk
A smiley and happy little boy has died following a heartbreaking battle with a rare disease.
Jace Carney was diagnosed with Krabbe disease when he was aged just 13-months-old.
The condition, which affects just 1 in 100,000 births, destroys the protective coating of nerve cells in the brain and nervous system.
READ MORE: Clean Air Zone: Burnham 'open to any solution' that cuts pollution without losing jobs
Those who are diagnosed are not expected to survive past the age of two.
Following a lengthy battle with the cruel disease, which saw Jace in and out of hospital, he sadly died on January 4 aged 20 months.
Hundreds came together in honour of him at his funeral on January 14.
Lead by a horse-drawn carriage, the procession made its way through Stockport followed by rows of cars.
Alongside his parents Scott Carney and Emma Prestage, from Northenden, friends and family lined the streets, letting off blue flares in honour of the Manchester City fan.
Rows of blue and white flowers and balloons lined the little boy’s grave at Southern Cemetery.
Also, the family received a bouquet of flowers from Manchester City FC, with a note reading: ‘With deepest sympathies from all of us here at Manchester City FC’.
Speaking to the Manchester Evening News , Jace’s uncle Jamie Whitehead said the outpouring of love at the funeral was a symbol of how much he was loved.
“He had touched a lot of people’s hearts,” he said.
“At the funeral there was a good few hundred.
“There were fireworks, and we had flowers off Manchester City FC.
“He was a fan of City and he had videos from the various players.
“A lot of people heard about it.”
From the moment Jace was diagnosed, the family have faced an agonising few months where it was unclear what could
He became The Christie's youngest ever patient at just 18-months-old when he was tragically diagnosed with a rare brain tumour.
John Hopewell Chief International CorrespondentHere, Variety talks with Fernando León de Aranoa, director of the Javier Bardem-starring “The Good Boss” (“El Buen Patron”), Spain’s Oscar entry, which is a big box office hit on home turf and has scored more Spanish Academy Goya nominations than any other film in history.What does it mean to you to be shortlisted for the best international feature Oscar?I feel a mix of joy and responsibility. It means following the steps of some of the greatest Spanish filmmakers who have done it before, being among a group of brilliant directors from all over the world and having the opportunity of showing “The Good Boss” to a wider audience.What’s been the most challenging aspect of your campaign thus far?To make our film visible amidst the strong contenders.
Has any Broadway production in recent (or even not so recent) memory arrived with as much emotional baggage – or carried it as lightly – as the visually and sonically ravishing MJ? The Michael Jackson musical, as unlikely as such a prospect might have seemed a year ago, now appears poised to take Manhattan with the same hurricane force that the real Jackson funneled when he moonwalked into television history on Motown 25.
Frank Rizzo Passions were never in short supply in Lynn Nottage’s 2003 play “Intimate Apparel,” where loneliness, longing and hope hover in every scene. In the latest, long-in-the-making collaboration between Lincoln Center Theater and the Metropolitan Opera, those passions fly free, revealing the operatic heart of “Intimate Apparel” in a new opera adaptation of this story of a 35-year-old Black seamstress aching for love in 1905 New York.The tight construction of the play, with its spare two-hander scenes and focus on the lives of ordinary and overlooked people, makes it a natural as a stripped-down chamber opera.
Chris Willman Music WriterHargus “Pig” Robbins, a Country Music Hall of Fame member who played piano on thousands of Nashville sessions and was renowned to Bob Dylan fans for his work on “Blonde on Blonde,” has died at age 84.
Dramatic footage shows a crowd of teenagers screaming and shouting at the Arndale amid a 'disturbance' which saw a 16-year-old boy stabbed in the chest.
Holy cow, this may be the most direct repudiation Britney Spears has launched at her sister!
ABC has set midseason premiere dates for a pair of 10 p.m. drama series. A Million Little Things returns for the second half of its fourth season on Wednesday, February 23, and Big Sky is back for Season 2B on Thursday, February 24.
Madonna all cuddled up to her kids, we very rarely see the Queen of Pop with her own parents. Her mother, Madonna Louise Fortin, sadly passed away in 1963, but we got to see the singer spend some quality time with her father, 90-year-old Silvio Ciccone, earlier this week.The “Material Girl” singer told her fans that it has always been her dad’s dream to make wine and own a vineyard one day.
A Scots mum has spoken of her heartbreak at losing her baby son after he was born with a rare birthmark on his liver.
Lourdes Leon shared a comfortable and casual, makeup-less selfie to her Instagram Story on Thursday January 20. The 25-year-old model, fresh off of modeling for the Savage X Fenty Valentine’s Day campaign, posted a mirror photo, where she rocked an oversized purple sweatshirt, and comfy-looking pair of sweatpants. Lourdes — who often goes by Lola — looked super relaxed, as she took the photo of herself with her hair tied back in a ponytail.
Former “American Idol” contestant Althea Grace is opening up about her daugher’s rare medical condition.
Britney Spears' fiery public feud with sister Jamie Lynn Spears continues. Spears 40, took to Instagram Wednesday to repost a statement she deleted quickly after posting Tuesday.
A young boy’s touching letter to his foster parents has had people reaching for the tissues after being shared on social media.
Britney Spears has hit out at her sister Jamie Lynn in a scathing rant on Instagram.The Toxic Singer, 40, said she should have "slapped" her sister and mum Lynne "across their faces". Singer Britney has been locked in a bitter feud with her 30 year old sister since the end of her conservatorship, as Britney unfollowed her sister on social media. Britney's latest post saw her claim her younger sister had an easier childhood.
NEW YORK -- André Leon Talley, the towering former creative director and editor at large of Vogue magazine, has died. He was 73.Talley’s literary agent David Vigliano confirmed Talley’s death to USA Today late Tuesday, but no additional details were immediately available.Talley was an influential fashion journalist who worked at Women's Wear Daily and Vogue and was a regular in the front row of fashion shows in New York and Europe.
Britney Spears, 40, is taking a legal step when it comes to her public feud with her younger sister Jamie Lynn Spears. The singer asked her attorney Mathew S. Rosengart to issue her 30-year-old sibling a cease and desist letter, which was obtained by Page Six, that demands her to leave her out of her book tour for her just released memior, Things I Should Have Said, and says that she “will no longer be bullied” for the point of book sales.
Madonna than her very own offspring?According to reports from the Mirror, the “Material Girl” singer may be played by her 25-year-old daughter Lourdes Leon in a film about her life.It goes without saying that the young model and actress looks like a young version of her 63-year-old mother, making many fans think this would be a perfect choice for the movie. Others said to be in the running to play the pop star are Black Widow actress Florence Pugh and Kanye West’s girlfriend Julia Fox, who was recently seen out with Madonna.Reports confirm that a script for the project has already been finalized with help from Girl On The Train writer Erin Cressida Wilson.