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Scots mum who refused to terminate baby with spina bifida is determined to give him a fighting chance
22.01.2022 - 07:55 / dailyrecord.co.uk
A Scots mum who refused to terminate her baby with spina bifida and hydrocephalus is determined to give him a fighting chance.
Jackson Dinsdale, aged one, from Glenrothes, Fife, was born to Kirsty Dinsdale, aged 30 and Johnny Dinsdale, aged 34 in December 2020.
When Kirsty was 20-weeks pregnant, they were told that Jackson was expected to be born with Spina Bifida Myelomeningocele.
Spina bifida affects the both spine and spinal cord when they don't develop properly in the womb, creating a gap within the spine.
The Myelomeningocele form of the condition, when the spinal canal remains open along several vertebrae, is the most severe type.
The couple were also told their baby would have Hydrocephalus, a build-up of excessive fluid in the brain, which can cause damage.
Kirsty refused offers of a termination from medics and Jackson was born December 16, 2020, with both conditions.
He has already undergone three major surgeries and is in and out of hospital on a monthly basis but his parents are determined to give him every chance.
They have set up a fundraiser for treatments which aren't currently available on the NHS including physiotherapy, neuromuscular electrical stimulation and hydrotherapy.
Spina bifida is often referred to as a 'snowflake condition' which doesn't affect two people in the same way, and it is difficult for medics to predict how Jackson's health will be affected as he grows older.
Kirsty is hopeful the private treatments will give him the best chance.
Kirsty said: "Considering everything that's he been through, he's so smiley and cuddly and just absolutely wonderful.
"We have been told that this is the optimum time, these are the vital years to really make an impact with a child.
"That's why we're trying to do
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