It's a subject that's troubling everyone from industry leaders in Greater Manchester to the likes of Major Tim Peake and Carol Vorderman.
02.10.2022 - 09:43 / manchestereveningnews.co.uk
For the first two years of her life, Ruby Pollard was a perfectly healthy little girl. She could crawl, use her hands and say words like ‘mama’ and ‘papa’.
Overnight, the milestones she had reached were suddenly gone. Ruby could no longer babble, crawl or sit up by herself. Her mum, Sandra Gamble, knew something wasn’t right.
It took years for the mum-of-two to discover what was wrong with her baby. Health visitors initially thought Ruby had autism, but the reality was something far worse. Ruby had Rett syndrome.
Rett syndrome is a rare disorder which causes severe mental and physical disability. The condition is estimated to affect about one in 12,000 girls born each year and is only rarely seen in boys.
The neurological disorder is also lifelong. Sadly, it’s not known whether Ruby will ever be able to walk or talk again.
READ MORE: "I took my daughter shopping to The Trafford Centre and the toilets were disgusting"
“I’d never heard of the disorder, even when they asked for my consent to do a test,” Sandra, 46, told the Manchester Evening News. “I knew nothing about it whatsoever. When we got a letter confirming the diagnosis, it invited me to have a chat with the genetics team and they told me it was a rare genetic disorder.
“It’s been really hard and upsetting. You think you’re reaching these milestones like crawling and it stopped. She was full regressed. It was deflating – you feel deflated. What else is Rett syndrome going to take from her?”
Not only can Rett syndrome lead to problems with brain development, it can also cause epilepsy – something five-year-old Ruby, from the Partington area of Trafford , has now started suffering from.
The tot has lost the ability to use her hands purposely, instead making
It's a subject that's troubling everyone from industry leaders in Greater Manchester to the likes of Major Tim Peake and Carol Vorderman.
Manchester City footballer Bernardo Silva has welcomed a “new family member” with his girlfriend Ines Degener Tomaz.
Florence + The Machine have shared a new live album recorded at their huge Madison Square Garden show in New York last month.The gig took place on September 17 as part of a world tour behind Florence’s new album ‘Dance Fever’, and a 24-track live album of the performance has hit streaming services today (October 14).The career-spanning set begins with recent single ‘Heaven Is Here’, with ‘Dance Fever’ songs ‘Free’, ‘King’ and more also aired.The live album then finishes with renditions of huge hits ‘Shake It Out’ and ‘Rabbit Heart (Raise It Up)’.Listen to the whole thing below.The North American leg of the ‘Dance Fever’ world tour will wrap up tonight (October 14) with a show at the Hollywood Bowl in Los Angeles. From there, the tour will continue on to the UK and Europe in November, before heading to Australia and New Zealand in early 2023.‘Dance Fever’, Florence + The Machine’s fifth studio album, was released in May 2022.
A mum has praised a 'soft and cosy' B&M product that sent her toddler 'to sleep in minutes' without needing to put the heating on. Gemma Lanigan says her three-year-old daughter Rosie Aldred is often exhausted after a day at nursery but can sometimes find it difficult to nap, especially in the colder months.
Green Bay Packers quarterback Aaron Rodgers has insisted that he is now a supporter of Manchester City after switching his allegiance from following Liverpool. The 38-year-old NFL legend, who has been recently in the UK as his Packers' side faced off against the New York Giants in London, was quizzed on which 'soccer' team has his backing.
Blink-182 have reunited with Tom DeLonge for a huge world tour, and are due to release a new single this week.The song ‘Edging’ is set to arrive on Friday (October 14), and it marked the first time in a decade that DeLonge, Mark Hoppus and Travis Barker had been in a studio together (pre-save/pre-add it here).A new full-length studio album is also in the works, details of which are yet to be revealed.Additionally, the trio have announced their biggest tour to date, with concerts confirmed in the UK, Europe, North America Australia and New Zealand as well as their first-ever shows in Latin America.The mammoth stint will kick off next March and conclude in February 2024. For the UK leg, Blink-182 will visit Glasgow, London, Birmingham and Manchester in September and October 2023.Tickets go on sale at 10am local time next Monday (October 17).
Cheryl Tweedy has shared her thoughts on an 'intensely emotional' night after the remaining members of Girls Aloud fulfilled Sarah Harding's dying wish. On Saturday night Cheryl, Nicola Roberts, Kimberley Walsh and Nadine Coyle hosted a fundraising gala for cancer research in memory of their late bandmate.
Dermot Kennedy has also announced the dates for his 2023 UK and European tour.‘Innocence and Sadness’ is a powerful, piano-led offering that will feature on his second studio album, ‘Sonder’ – due for release on November 4. The release of the track has also been accompanied by an acoustic performance shot live from Mission Sound Studios in Brooklyn, New York.“It’s impossible for me to express how much this song means to me,” Dermot said of the single.
A Guinness World Record for the most scripted jump scares in a single episode of television has a claimant. Coincidentally (well, not really), it’s a new series premiering on Netflix.
promises to be “a season like no other.” Ahead of the horror anthology franchise’s return with its 11th installment, FX released a sexy yet creepy teaser for the upcoming, star-studded new season. While no official details for the plot have been released, the teaser appears to be leaning into the BDSM scene and queer culture with New York City potentially inspired by the infamous Al Pacino film,, which was about a serial killer who targeted gay men. The new season also features one of creator Ryan Murphy’s largest LGBTQ casts following and, with Joe Mantello, Zachary Quinto, Russell Tovey, Charlie Carver, Isaac Powell and Denis O’Hare all set to appear in the upcoming episodes. Rounding out this year’s ensemble are alum Billie Lourd, Leslie Grossman, Sandra Bernhard and Patti LuPone. In addition to the teaser, FX has shared new photos of some of the characters, revealing that Quinto is playing the whip-wielding Sam, Carver is Adam and Tovey is Patrick, who appears to be a cop or detective. A post shared by American Horror Story (@ahsfx)A post shared by American Horror Story (@ahsfx)A post shared by American Horror Story (@ahsfx)Spanning 10 episodes, will premiere with two episodes on Oct.
Hollywood came to Manchester on Monday as Fast Furious star Luke Evans and director Phil Allocco were spotted filming new movie 5lb of Pressure in Manchester. Welsh actor and singer Luke, 43, stars in the story of a man on a quest for redemption and the Northern Quarter was transformed for the scenes, believed to be set in Brooklyn, New York.
Arctic Monkeys were the latest musical guests on The Tonight Show Starring Jimmy Fallon, where the band brought ‘Body Paint’ – the latest preview of their forthcoming seventh studio album ‘The Car’.The band’s Fallon appearance was filmed while the band were in New York to play an intimate “phone-free” concert at the 3,000-capacity Kings Theatre in Brooklyn.Alex Turner and co’s live rendition elevates all the glitzy, slow-burning slickness of the studio version – which arrived on Thursday (September 29), following lead single ‘There’d Better Be a Mirrorball’ in August. Watch below:In a four-star review of ‘Body Paint’, NME described the second preview of ‘The Car’ as “an ambitious, swaggering rock ballad” that proves “the band have no issue creating something otherworldly, even when the subject matter is far closer to earth.”‘The Car’, which will follow on from the band’s 2018 album ‘Tranquility Base Hotel & Casino’, is set to arrive on October 21 via Domino.
is back with its 11th installment in FX’s long-running horror anthology series, which is officially dubbed and will debut mid-October. Presumably leaning into the queer esthetic teased by leaked photos of the production, the newest season also stars an all-star LGBTQ cast, including Joe Mantello, Zachary Quinto, Russell Tovey, Charlie Carver, Isaac Powell and Denis O’Hare. Rounding out this year’s ensemble are Billie Lourd, Leslie Grossman, Sandra Bernhard and Patti LuPone. For those keeping track, marks the return of alums Quinto, Powell, LuPone, Lourd, Grossman and Bernhard, while the rest are newcomers to the franchise despite having previously worked with co-creator Ryan Murphy.While few details are known about the new season, FX chairman John Landgraf told that season 11 would go back to being one story after last year’s Double Feature. “It actually takes place in different timelines but it’s one subject, one story, with a beginning, middle and an end, like many of the prior stories,” he said. Sadly, for fans of the series, longtime recurring players Sarah Paulson and Evan Peters appear not to have roles in season 11.
Patrice Evra has recalled the first time he ever received the 'hairdryer treatment' from Sir Alex Ferguson at Manchester United.
Police are appealing for witnesses after a car was stolen with a toddler in the backseat. A two-year-old girl was still in the vehicle when it was driven off by a thief in County Durham. Fortunately the youngster was found safe and well a few minutes later, but officers are investigating the incident, which took place in Church Street, Quarrington Hill, near Durham City, at about 7pm on Wednesday night (September 21). A family had parked their silver Vauxhall Vectra outside a relative’s house to drop shopping off when a dark Nissan X-Trail pulled up in the street and drove slowly past. The engine of the Vauxhall was still running while one member of the family stood by the car door and others took items inside. The suspect vehicle then reversed back along the street to pull alongside the Vauxhall and a man, dressed in a blue hooded jacket and black joggers, jumped out and climbed into the driver’s seat, with the two-year-old strapped into a car seat in the rear.
Father John Misty has added new dates to his 2023 UK and European tour – tickets are available here.The singer-songwriter announced the run of shows earlier this year, but he’s now an extra three UK gigs at Brighton Dome on March 10, Portsmouth Guildhall (11) and Leeds University (12).Misty (real name Joshua Tillman) has also confirmed an additional concert at Oslo Sentrum Scene on February 26, and a new date at Gothenburg Pustervik the following night (27).You can see FJM’s revised UK/European schedule for 2023 below.FEBRUARY 202325 – Oslo, Sentrum Scene26 – Oslo, Sentrum Scene 27 – Gothenburg Pustervik 28 – Stockholm, CirkusMARCH 20232 – Denmark, KB Hallen3 – Berlin, Columbiahalle4 – Amsterdam, AFAS Live6 – Brussels, Ancienne Belgique7 – Paris, Salle Pleyel9 – London, O2 Academy Brixton 10 – Brighton Dome11 – Portsmouth Guildhall12 – Leeds University13 – Gateshead, Sage Gateshead15 – Glasgow, Barrowlands17 – Manchester, O2 Apollo ManchesterMeanwhile, Father John Misty has released a new live EP called ‘Live At Electric Lady’ which features a cover of Stevie Wonder‘s ‘I Believe (When I Fall in Love It Will Be Forever)’.Recorded at the iconic Electric Lady Studios in Greenwich Village, New York City back in May, the special collection also contains live versions of five songs from FJM’s latest album ‘Chloë And The Next 20th Century’.Tillman is currently out on the road in North America, with his next show scheduled for tomorrow (September 22) at New York’s Radio City Music Hall.