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Mum thought her little girl was just clumsy - but then a devastating diagnosis changed their lives forever
23.06.2022 - 21:13 / manchestereveningnews.co.uk
A mum who first thought her baby was clumsy now has to support her daughter to walk, eat and bathe herself due to a life-limiting disorder. Nicola Morris, from Moorside, Oldham, first started noticing her little girl Imogen was unsteady on her feet and tumbling over a lot when she was just two years old - but now watches her 'deteriorate every day'.
After years of desperately searching for answers and multiple healthcare appointments, she was eventually handed the news that Imogen, now 15 years old, had an extremely rare genetic disorder that would see her movement and abilities worsen over time and could even see her lose her sight.
As she battles with mothering three children and trying to support the needs of her daughter, whose illness is life-limiting, Nicola is hoping to travel across to the Netherlands to see specialists who are researching potential treatments for children with the disorder. It is a painful experience that sees Nicola watch her own daughter lose her independence day by day.
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Speaking to the Manchester Evening News , single mum Nicola said: "I always noticed things were different about Imogen, even from being as young as two or three. Her balance was poor, she was clumsy on her feet and would fall over all the time.
"At first we just thought it was her being young, and she was my first child so I couldn't compare it to anything, but I started noticing she was getting worse.
"She was referred to physio and occupational therapy, but then in year two she couldn't walk without holding onto things, couldn't step through doors and was becoming less steady on her feet. I pushed for her to be seen by
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