'Like EastEnders' Whitney, I lost my baby to Edwards' syndrome at 24 days old'
28.02.2023 - 23:11
/ ok.co.uk
Last month EastEnders announced a new powerful storyline regarding Whitney Dean and Zack Hudson’s baby. It was revealed that the pair, who are played by Shona McGarty and James Farrar, would be told by doctors during what they believed to be a routine ultrasound scan, that their baby has Edwards’ syndrome. Also known as trisomy 18, it's a rare but serious condition which affects how long a baby may survive – sadly, most die before or not long after being born.
On yesterday’s episode of the BBC One soap, viewers witnessed the upsetting scenes when the couple received the devastating diagnosis, which is set to force them to navigate a series of difficult decisions in the weeks ahead. As the hard-hitting storyline unfolds , OK! talks to Katie Mainwaring, 37, who knows exactly how it feels to be told that your child has Edwards’ syndrome… “As I watched the heartbreaking scenes on EastEnders, that Whitney is told that her baby has a life-limiting condition and won’t survive, I felt happy as well as sad. Yes, it brought back the pain I felt when my own baby girl, Emily, died at just 26 days old.
But it has also given me hope. Now that Edwards’ syndrome, also known as trisomy 18, is being talked about more openly, perhaps other parents will be better-equipped to deal with this awful diagnosis.The genetic condition means babies have an extra copy of chromosome 18 and usually live for less than a week. My husband Ben, 45, and I were enjoying my first pregnancy in 2011.Then, at around seven months, an extra growth scan showed signs our baby wasn’t developing as expected.
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