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"It's like watching a child" - Wife of Alzheimer's patient in desperate plea as Brexit set to delay new drug
08.12.2022 - 08:31 / dailyrecord.co.uk
The wife of a man who has Alzheimer's has told how she believes a new wonder drug set to be delayed for use in Scotland would have "meant the world" to a family like hers.
It comes as we reveal Brexit will delay the ground-breaking drug getting to Scots patients, a leading expert has warned. The drug, Lecanemab, was hailed as a new wonder pill which can slow down Alzheimer’s, after studies were released in the US last week.
But because Scotland is no longer in the EU, doctors have warned Alzheimer’s sufferers and their families it could take several years to be approved for use in the UK. Existing trade deals between the EU and US could see the drug fast-tracked for use in the rest of Europe.
Robert Gray, from Glasgow, was the infection control manager at Scotland’s Golden Jubilee Hospital until his early retirement. But once he stepped away from work, his wife Val, 63, noticed changes in his behaviour which ultimately led to his Alzheimer’s diagnosis last year.
Since then Robert, 67, has seen a deterioration in his condition which means he is often unable to remember his wife and children’s names, has seen his mobility and speech deteriorate and has left him incontinent.
Val said it would have “meant the world” to the family had a drug like Lecanemab been available to Robert. She said: “It would have meant a lot for us to have had more time with him the way he was. Being able to hold it at bay would have been amazing.”
And she said the news that Brexit would keep the drug out of the UK for longer was “shocking”. She said: “That is so unfair. Everybody who has this condition should be able to get it as soon as possible. “It is just not fair for everybody else who could benefit from it. We would have loved to have had
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